Last Saturday saw Perryway Players perform in their very first murder mystery night, ‘Murder in an indecent Manor’ in aid of Youth at Heart Thank you to everyone who came to support this event.

The charity was superb, decorating the room with ‘crime scene’ banners and the table decorations were wonderful.

A delicious 3 course meal was then served up by Cotswold Caterers while the audience tried to guess ‘whodunnit’. We thoroughly enjoyed ourselves and were totally spoilt by Youth at Heart.

The success was due to everyone working together so a big thank you to everyone who took part or supported this event in any way.

Youth @ Heart

We recognise that 85% of children born with CHD now survive into adulthood.

We aim to offer support, awareness and opportunity to teenagers, young adults (16 to 24) and their families in Gloucestershire (across South Wales and the South West of England), born with complex Congenital Heart Disease (CHD).

We also aim to raise public understanding of complex CHD and its impact on the young person and their family.

These young people battle daily with life limiting and terminal illness. Their emotional health affects their physical health. Our support will help enable them to have greater access to life opportunities. Your support will help us achieve this.

We have employed an Adult Cardiac Youth Worker, who will undertake a liaison role between the young person, medical professionals and community provision.

The Youth Worker’s focus will be the young person’s holistic needs and support for their emotional wellbeing.

We take the gift of our children’s good health for granted – but in fact a healthy baby is a miracle. There are currently over 5000 young people with Congenital Heart Disease in the South West, of which 600, have complex conditions. These young people are all supported by the Bristol Heart Institute.  They and their families are battling to come to terms and cope with the physical and emotional challenges of life limiting, or terminal heart conditions.

Congenital heart disease (CHD) is a general term for a range of birth defects that affect the normal workings of the heart. Congenital means that the condition is present at birth. CHD is one of the most common types of birth defect, affecting up to 9 in every 1,000 babies born in the UK.    Find out more

Surgery or interventional procedures are usually required if the defect is significant and causing problems. Surgical techniques are now able to often restore most, or all of the heart’s normal function enabling about 85% of children with CHD to survive into adulthood.

Most surgery and interventional procedures are not considered to be a cure. The affected person’s ability to walk or exercise may be limited, which can progress as time passes and may lead to the need for further surgery or intervention. Some people with more complex CHD may not have a normal life span.

Find out more about support in South Wales and the South West

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